Announcing Arthritis Life!
I am proud to launch Arthritis Life: a video project featuring life hacks, patient stories, provider interviews, product reviews and more. Check out my Youtube channel trailer above! My mission is to educate, empower and inspire patients with arthritis and their providers through sharing life hacks and personal stories. Interested in participating in this project or learning more? If you are a patient or provider who’s interested in being interviewed, please contact me via the contact page above. Please let me know if you have any requests for life hack video topics! Please subscribe to my Youtube Channel so you’ll be the first to know about new video uploads. If…
My Invisible Illness Photo Shoot
Introduction People often remark that those of us with invisible illnesses “don’t look sick.” However, we deal with substantial physical and emotional challenges. To shed light on the often hidden side of living with chronic illness, I completed an “Invisible Illness Photo Shoot” with dear friend and phenomenal photographer Jessica Keener Photography. Goals of the photo shoot 1. To illustrate that you cannot tell what someone is going through just by looking at them. I hope that these photos help people remember to “be kind, for everyone you meet is fighting a hard battle” (Ian MacLaren). 2. To help those who have similar invisible challenges not feel alone. I have benefited from…
To my Chronic Illness Medical Team…
It was very therapeutic for me to write a guest blog post for CreakyJoints, a patient advocacy and education site that focuses on arthritis and related conditions. To my chronic illness medical team is my love letter to the often unsung heroes in the medical profession: providers who care for patients like me who have chronic, complex, invisible illnesses. I am so fortunate to have had dozens of compassionate, caring providers during my 16 years with rheumatoid arthritis. I hope to inspire other providers to go into some of the less popular specialties such as pediatric rheumatology, where there are currently some shortages nation-wide. You won’t have the most straightforward patients,…
Parenting Without Pain: Dressing and Clothing Life Hacks
I am proud to be a guest blogger with the wonderful patient resource Creaky Joints. I am currently writing a series of posts on the topic of Parenting Without Pain. The posts will tackle how parents with arthritis or other painful joint conditions can approach activities of daily living involved in caring for children in a way that minimizes joint pain. My first topic is Dressing and Clothing Life Hacks. In this post, I cover everything from clothing selection (more zippers, less snaps!) to joint protection strategies, regardless of materials used (such as using a hand splint, as pictured below). Click here for the full post! (Note: as of 2019 the post isn’t available due…
A New Way to interpret “But You Don’t Look Sick”
I am happy to report that I am now blogging on the Creaky Joints website. Creaky Joints is a nonprofit that provides information sharing, support, and advocacy resources for persons with arthritis and related conditions, many of which are chronic, invisible illnesses. My first blog post was A New Way to Interpret “But You Don’t Look Sick – please note the link is currently broken but I’m told it will be fixed soon (as of 10/2019). While we’re waiting for it to be back up, I’ve posted the text for this post below. ————————————————————————————————————– When I communicate my diagnosis of rheumatoid arthritis to someone for the first time, I’m often told…
The Storm After the Calm: 8 Lessons Learned After A Tumultuous Postpartum Experience With Rheumatoid Arthritis
I was recently honored to share my pregnancy and postpartum journey with the popular and helpful website Autoimmune Mom, and it is now housed on the American Autoimmune and Related Diseases Association site. The full story can be found here. The post details my journey from a relatively tranquil pregnancy to a postpartum “storm” due to my chronic illness issues (including rheumatoid arthritis). It includes three sections after Charlie’s birth: Survival, Mastitis and Flare-Ups (0-3 months) Feeling Like I “Almost Got This,”or Wayward Optimism (4-16 months) The New Normal: Accepting that life/parenting/my health is now in a permanent state of flux (16 months to present). The gist of the post is that therapy…
My Chronic Illness Playlist
Why music? While managing my autoimmune disease rheumatoid arthritis over the last 12 years, I’ve found music to be helpful in a variety of situations. Some songs help me calm down when I’m anxious, other songs allow me to just “be” in a sad moment, and some music inspires me or puts everything in perspective. Not surprisingly, research has shown that listening to music can have many positive effects on one’s mood as well as other aspects of the mind. Research specifically on the use of music in persons with chronic illness have found it to have beneficial effects as well. With that in mind, I’d like to share my personal “chronic illness playlist.” I’ve divided the songs…
Bringing Home Baby Without Breaking Your Body – How to protect your joints when you have arthritis and a new baby
Despite infants’ diminutive size and stature, caring for a new baby is a very physical job! Many new parents and caregivers experience joint or muscle pain after repetitive stress caused by lifting, carrying, diapering, and holding their baby. It’s estimated that between 25-50% of new parents experience DeQuervain’s tenosynovitis (or “Mommy thumb”) alone. It is also common to have pain in other areas such as the wrists, shoulders and back. These issues are of course exacerbated by chronic underlying illnesses such as autoimmune arthritis. From my experiences as a new mom with rheumatoid arthritis and from my training as an occupational therapist, I would like to share tips on my…
The Role of Facebook Communities in Social Participation for Persons with Rheumatoid Arthritis: A Content Analysis
Research overview & summary My colleague Kristin Jones, OTR/L and I conducted the following qualitative research. It details the most frequent topics of conversation for persons with rheumatoid arthritis who engage in disease-specific Facebook groups. My experiences as a patient participating in these groups inspired this research. In order to objectively assess the communication content of these social media groups, Ms. Jones and I performed the data analysis seen below in the data overview section. The poster is pasted below and can also be found at SlideShare. Research poster Significant Findings 1. The majority of Facebook group posts served to provide information or support. Information was provided most often in the form of advice…
Bringing Home Baby: Tips for Meeting the Caregivers’ Basic Needs
It’s hard to put into words how simultaneously joyful, exhausting, transcendent, stressful, surreal, and miraculous the first few months home with an infant can be. Now that I’m emerging from the fog but the experience is still fresh in my mind, I’d love to share some tips and strategies that helped me adjust to parenthood* over the last five and a half months. While pregnant, I found countless resources for how to care for a newborn, from feeding to sleeping to swaddling to safety. However, there were less resources available for how to care for myself and other primary caregivers in the newborn days. Thus, I will focus on these…